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Privacy Policy

Epilepsy Reach Foundation
Effective Date: January 1, 2026

Epilepsy Reach Foundation (“we,” “our,” or “us”) is committed to protecting your privacy and ensuring transparency in how your personal information is collected, used, and safeguarded. This Privacy Policy outlines our practices regarding data collection, usage, storage, and protection when you visit our website, engage with our services, or communicate with us.

1. Information We Collect

We may collect the following types of information:

a. Personal Information

Information you voluntarily provide, including:

  • Full name
  • Email address
  • Mailing address
  • Phone number
  • Any additional information submitted through forms, registrations, or communications

b. Automatically Collected Information

When you visit our website, we may collect:

  • IP address
  • Browser type and version
  • Device type
  • Pages visited and time spent on the site
  • Referring website

c. Cookies and Tracking Technologies

We may use cookies and similar technologies to:

  • Improve user experience
  • Analyze website performance
  • Understand user behavior

You may disable cookies through your browser settings; however, some website features may not function properly.

2. How We Use Your Information

We use collected information to:

  • Provide and manage our programs, services, and events
  • Respond to inquiries and provide support
  • Send updates, newsletters, and relevant communications
  • Process donations, registrations, or requests
  • Improve website functionality and user experience
  • Ensure compliance with legal obligations

We do not use your information for unrelated purposes without your consent.

3. SMS Messaging Policy

Epilepsy Reach Foundation respects your privacy. By opting into our SMS messaging service, you agree to the following terms regarding how we handle your data:

  • Data Collection: We will collect your name, email address, mailing address, and mobile phone number when you sign up for SMS updates. The information will be collected via the website contact form, email, rental agreement, or third-party reservation systems.
  • Data Usage: We use your data solely for sending (Send reminders, book appointments, customer care).
  • Data Security: We protect your data with secure storage measures to prevent unauthorized access.
  • Data Retention: We retain your information as long as you are subscribed to our SMS service. You may request deletion at any time.
  • MESSAGE AND DATA RATES MAY APPLY. Your mobile carrier may charge fees for sending or receiving text messages, especially if you do not have an unlimited texting or data plan.
  • Messages are recurring, and message frequency varies.
  • Contact Epilepsy Reach Foundation at 704-907-7250 or info@epilepsyreach.org for HELP or to STOP receiving messages.
  • Opt-Out: You can opt out of the SMS list at any time by texting, emailing, or replying STOP or UNSUBSCRIBE to info@epilepsyreach.org or 704-907-7250. After unsubscribing, you will receive a final SMS to confirm you have unsubscribed and we will remove your number from our list within 24 hours.
  • You can send HELP for additional assistance, and you will receive a text including our phone number, email, and website. We are here to help you.
  • Non-Sharing Clause: We do not share your data with third parties for marketing purposes. Epilepsy Reach Foundation will not sell, rent, or share the collected mobile numbers.

4. Data Sharing and Disclosure

We do not sell, rent, or trade your personal information.

We may share information only in the following limited circumstances:

  • With trusted service providers who assist in operating our website or services (under strict confidentiality agreements)
  • When required by law, regulation, or legal process
  • To protect the rights, safety, and integrity of our organization and community

5. Data Retention

We retain personal information only as long as necessary to:

  • Fulfill the purposes outlined in this policy
  • Comply with legal, accounting, or reporting obligations
  • Maintain records for organizational operations

When data is no longer needed, we securely delete or anonymize it.

6. Data Security

We implement appropriate administrative, technical, and physical safeguards to protect your information, including:

  • Secure servers and encrypted data storage
  • Limited access to authorized personnel only
  • Regular monitoring for potential vulnerabilities

While we strive to protect your data, no system can be guaranteed 100% secure.

7. Your Rights and Choices

You have the right to:

  • Access the personal information we hold about you
  • Request corrections to inaccurate information
  • Request deletion of your data (subject to legal obligations)
  • Opt out of communications at any time

To exercise these rights, contact us at info@epilepsyreach.org.

8. Third-Party Links

Our website may contain links to third-party websites. We are not responsible for the privacy practices or content of those external sites.

9. Children’s Privacy

Our website and services are not intended for children under the age of 13 without parental consent. We do not knowingly collect personal information from children without appropriate authorization.

10. Changes to This Privacy Policy

We may update this Privacy Policy periodically. Updates will be posted on this page with a revised effective date. Continued use of our website constitutes acceptance of those changes.

11. Contact Us

If you have any questions about this Privacy Policy or how your data is handled, please contact:

Epilepsy Reach Foundation
Email: info@epilepsyreach.org
Phone: 704-907-7250
Website: www.epilepsyreach.org