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May is Mental Health Awareness Month, a time to shed light on the importance of mental well-being and advocate for those facing mental health challenges. Today, we’re diving deep into the complex relationship between epilepsy and mental health, exploring comorbidities, suicide risk, and the impact of stigma. Join us as we discuss strategies for self-care, coping, and overcoming barriers to support.

Comorbidities: Understanding the Link Between Mental Illnesses and Epilepsy

Living with epilepsy can increase the risk of developing mental health conditions such as anxiety, depression, and mood disorders. In fact, one-third of people with epilepsy experience depression and anxiety, making these the most common comorbidities associated with the condition (Holland, 2019). Additionally, nearly 50% of those with epilepsy also have a learning disability (Mula, 2019).

The constant fear of having seizures, the impact of seizures on daily life, and the side effects of medications can all contribute to emotional distress. Recognizing the signs of mental health concerns and seeking support when needed is crucial for managing both epilepsy and mental well-being.

Suicide and Epilepsy: Addressing the Risk

Individuals with epilepsy are at a higher risk of suicide compared to the general population. Suicide rates are five times higher among individuals with epilepsy, and they are 22% more likely to die by suicide than the general population (Holland, 2019; Mula, 2019).

The stigma surrounding epilepsy, feelings of isolation, and the challenges of managing the condition can contribute to feelings of hopelessness and despair. It’s crucial to take suicidal ideation seriously and seek immediate help if you or someone you know is in crisis.

Stigma: Breaking Down Barriers to Support

Stigma surrounding epilepsy can manifest in various ways, from misconceptions about the condition to discrimination in employment and social settings. This stigma can exacerbate feelings of shame and isolation, making it difficult for individuals with epilepsy to seek help and support. It’s essential to challenge stereotypes, educate others about epilepsy, and advocate for inclusivity and acceptance.

Tips for Self-Care and Coping Strategies

  1. Seek Professional Support: Reach out to mental health professionals who specialize in epilepsy and understand its unique challenges. Therapy, counseling, and support groups can provide valuable support and coping strategies.
  2. Educate Yourself: Knowledge is power. Learn as much as you can about epilepsy and mental health to better understand your condition and advocate for your needs.
  3. Build a Support Network: Surround yourself with understanding and supportive friends, family members, and healthcare providers who uplift and encourage you on your journey.
  4. Practice Stress Management: Incorporate stress-reduction techniques such as mindfulness, meditation, deep breathing exercises, or yoga into your daily routine to promote relaxation and emotional well-being.
  5. Prioritize Self-Care: Make time for activities you enjoy, whether it’s reading, listening to music, spending time outdoors, or practicing a hobby. Self-care is essential for maintaining balance and resilience.
  6. Stay Connected: Stay connected with others who understand what you’re going through by joining support groups or online communities. Sharing experiences and receiving support from peers can be incredibly comforting.
  7. Advocate for Yourself: Don’t be afraid to speak up and advocate for your needs. Whether it’s addressing medication side effects, seeking accommodations at work or school, or challenging stigma, your voice matters.
  8. Set Boundaries: Learn to say no to activities or commitments that drain your energy or exacerbate stress. Setting boundaries is essential for protecting your well-being.
  9. Focus on What You Can Control: Focus on the aspects of your life that you can control, such as your mindset, self-care practices, and coping strategies. Let go of the things you can’t control and focus on what brings you peace and joy.
  10. Celebrate Your Strength: Living with epilepsy requires strength and resilience. Celebrate your achievements, no matter how small, and acknowledge the progress you’ve made on your journey.

A Word from Our Professional Board Advisor for Mental Health

“As someone who lives with Epilepsy and is a Licensed Marriage and Family Therapist, I can say that Epilepsy presents a unique challenge to mental well-being for both the individual and their family. Not only can the constant threat of seizures cause many mental distresses such as anxiety and depression for the person with Epilepsy, but it can also take a toll on those around them. Witnessing seizures can be frightening for family members, and the unpredictable nature of the condition can create a constant undercurrent of worry. Additionally, some epilepsy medication side effects can worsen mood in the person with Epilepsy, which can further strain family dynamics. This is why managing mental health is crucial for everyone involved. Just like having a strong teammate, focusing on mental well-being through therapy and coping mechanisms can help both the person with Epilepsy and their family navigate the emotional rollercoaster. By prioritizing both physical and mental health, the whole family can work together to take control, in a time that feels like everything is out of control.”

—Dr. de León, LMFT, AAMFT Approved Supervisor

Conclusion

Living with epilepsy and managing mental health challenges can be difficult, but it’s essential to remember that you are not alone. By prioritizing self-care, seeking support, and challenging stigma, individuals with epilepsy can navigate the intersection of epilepsy and mental health with resilience and hope. Let’s continue to raise awareness, break down barriers, and build a more inclusive and supportive community for all.

If you or someone you know is struggling with epilepsy and mental health, don’t hesitate to reach out for help. You are not alone, and support is available. Together, we can overcome challenges and thrive.

Let’s stand together, break the stigma, and support one another on our mental health journeys. You are worthy of love, acceptance, and support.

Suicide and Crisis Line: Call or Text 988 to be connected with a trained crisis counselor 24/7.

Trevor Project: Suicide prevention and crisis intervention nonprofit organization for LGBTQ+ young people. They provide information & support to LGBTQ+ young people 24/7.

NAMI HelpLine: If you’re a teen or young adult with questions about mental health, you can call 1-800-950-NAMI (6264) to speak with a NAMI HelpLine specialist. They provide support and information related to mental health concerns.

Also visit Epilepsy Reach Additional Resources for more information.

Holland, K. (2019, May 14). Epilepsy: Facts, statistics, and you. Healthline. https://www.healthline.com/health/epilepsy/facts-statistics-infographic 

Mula M, Kanner AM, Jetté N, Sander JW. Psychiatric Comorbidities in People With Epilepsy. Neurol Clin Pract. 2021 Apr;11(2):e112-e120. doi: 10.1212/CPJ.0000000000000874. 

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